As the fast-paced spin of the world seems to slow to a crawl, many of us are left scrambling to figure out what to do next. The coronavirus outbreak is unlike anything that has happened in our lifetimes.  It struck hard, overturning worldwide commerce and compromising the health and well-being of countless families.  And, the epicenter of the attack in the United States is New York City.  As you are reading this, we are all secluded indoors and practicing social distancing to protect our health, as best we can.

Someone who is not dealing with a special needs child or children, can’t appreciate the lows and the highs - the difficulties and the beautiful moments - that we go through every day, week, month, and year.”  This is what I have heard from my clients and it is clear that their experiences are the very reason that a 2018 study by Professor Meghan Burke at the University of Illinois found that “fewer than half of parents of children with intellectual and developmental disabilities make long-term plans about who will take over their child’s care if the parent or other relative providing care dies or becomes incapacitated.”